There is a team of volunteers who between them ensure the smooth running of the Red Robin Trust there are trustees, a support team and our partners who work together to ensure that everything we can possibly do to meet the aims – To find out a bit more about us read on.
Meet the Trustees
My name is Tony Thurling, I live in Somerset and have four children and eight grandchildren. My business and background of work has been in advertising and marketing for more than 50 years and continuing. I keep myself active attending the gym, I enjoy gardening, cooking, sailing and I am a Rotarian and have recently been elected as the President of Wrington Vale. It was through being a Rotarian and participating in one of our events, that I became aware of Maffucci Syndrome and Ollier’s Disease and I was keen to learn more, I made contact with Sarah Smith and Charlotte and was keen to be a part of the Red Robin Trust, I will use my skills and experience and sharing these within my role as Trustee for the Red Robin Trust.
Meet the Support Team
Hey i’m Paul AKA Smiffy to the maffucciandolliers members , I live in Peterborough and I am married with 4 children and 5 grandchildren. I work full time as a qualified Electrical/Mechanical Engineer and in my spare time I have a keen interest in IT and building and developing websites. After the diagnosis of my nephew I offered my skills to support in the development and hosting of the website www.maffucciandolliers.co.uk,I also support and attended the conference and now the Red Robin Trust. I volunteer my time and have learnt so much over the years about these conditions and am pleased to be supporting.
Meet the Medical Advisory Board
Mr Robert Ashford undertook his general orthopaedic training in East Anglia and Yorkshire and sub-specialist training in lower limb joint reconstruction and tumour surgery at the Royal National Orthopaedic Hospital, Stanmore and the Royal Prince Alfred Hospital, Sydney, Australia.
He was appointed as a Consultant Orthopaedic and Musculoskeletal surgeon at University Hospitals of Leicester NHS Trust and the East Midlands Sarcoma Service in 2007. He is lead clinician for the East Midlands Sarcoma Service and is the East Midlands Senate Member for the NHS England Sarcoma Clinical Reference Group.
Mr Ashford’s practice is the management of bone and soft tissue tumours, skeletal metastases and he has an elective orthopaedic practice in lower limb arthroplasty. He has a specialist interest in palliative orthopaedic surgery and surgery for skeletal metastases. Mr Ashford has published extensively in these fields and has been awarded his MD for research into skeletal metastases in breast cancer.
In 2014 he was selected as one of the British Orthopaedic Association’s ABC (American-British-Canadian) Travelling Fellows visiting 12 centres in America and Canada.
He is delighted to join the Red Robin Trust and the Maffucci and Ollier’s Association as medical advisor and working with them to develop groundbreaking research into Maffucci’s and Ollier’s.